Family Experiences

“This intervention technique enables him to play creatively and follow my lead, as well as me getting the chance to see how he wants to play creatively. I can see how this will help him learn turns with peers/adults as well.”

– Mother of a minimally verbal child with autism after engaging in JASPER intervention through the SPROUT Study

“一个

– Father of minimally verbal teen with autism

This family was interviewed throughout their experience with the CARE lab for a piece in a Boston University publication.You can read their story, ‘Unlocking Emily’s World’, here. 

“M

– Parents of a minimally verbal adolescent with autism

“Our girl gets very anxious in new environments and needs to have her ipad music blasting, but the BU staff were patient, caring, and in the most gentle way helped her feel comfortable and welcome. This is worth remarking because the staff who worked with her is young, but obviously very well selected for their warm calming demeanor. Our girl had a great time with them and was just fine the second visit. The BU staff was caring and patient with me too, after getting badly lost and almost canceling. We made through the first stage just fine and now our girl is adapting to being inside an MRI– she did great and I’m grateful for the confidence they instill in her. This is important work that involves long questionnaires, but it’s worth the time, and our kid always leaves with a smile.”

– Parents of a minimally verbal teen with autism

“Our son has been involved in several studies over the years with the Autism research that BU and MIT have committed themselves to doing. Over the years we have been to different sites at both universities and we plan on continuing to be involved. The staff are always highly professional as well as sensitive to the needs of our son and they are very well equipped to handle a multitude of variables. We all know that when working with children, especially children with ASD, it takes a special kind of person to be able to handle things with grace and be able to accommodate the “questions” and behaviors of the children participating. They explain everything in detail to all of us in terms our son understands and they give him the opportunity to explore things and ask as many questions as he needs to feel comfortable with the process. They never rush us through things and they always make you feel very calm.

The staff and study programs all have been a very rewarding experience for us. Our experiences with the studies our son has participated in have actually helped our son to be more flexible and willing to understand the world around him. They have given him the opportunity to help to develop strategies others may be able to use to understand ASD and how to possibly prevent it in the future. This has given him the pride that he needed to boost his self-esteem knowing that he is part of a bigger picture. It also reminds him regularly that there are many, many other people with ASD and each of them are unique individuals without labels.

We would definitely encourage others to get involved with the CARE program and help to understand how ASD works and how we can potentially make differences in the future to minimize the impact for others.”

– Mother of adolescent with autism